READING QUESTIONS WEEK 2

1. There is a lot of introductory material leading up to Part One of this book: “A Few Words About This Book”; an epilogue from Nobel laureate, writer and Holocaust survivor, Elie Wiesel; a Prologue; and two pages of introductory contextualizing of the book expressed in “Deborah’s voice,” the daughter of Henrietta Lacks.
   
   Why, for example, is the first line of this book “This is a work of nonfiction.” Why don’t other works of nonfiction announce that they are nonfiction? Why is Elie Wiesel’s an appropriate epigraph to this book? Why is the inclusion of “Deborah’s voice” appropriate, moreover, to a course about the conventions of research and argumentation?

2. The Afterword of this book is followed by a “Cast of Characters”—a list of names that form the basis of Skloot’s research—the people involved in the life of Henrietta Lacks. If Skloot goes out of her way in the first sentence of the book to declare, “This is a work of nonfiction,” why do you think she then uses the term applied in dramatic works, “cast of characters?”

3. This book does not have a traditional bibliography, yet the Notes show that it is extensively researched. How and why does it use notes in lieu of a traditional bibliography?

4. Based on what we read in Chapter One, “The Exam” what important information do we learn that is not on Henrietta’s medical chart? (16). What, according to her medical chart, do we learn about what kind of information was important to those who took information for a medical chart in 1951? Do you see any differences in the medical information that is prioritized today and that of 1951? Any similarities?

5. Chapter 3 is a varied mix of anecdote, original documents, the names of people, both medical professionals and patients, scientific terms, practices, and descriptions to craft a story that is based in fact. This mix of narrative and evidence is called literary journalism.
   
   How does Skloot use this method to expose the weaknesses in the conventions (both then and now) of communication between doctor and patient? What alternative method(s) of communication does she suggest?

6. How does the introduction of Deborah Lacks into the narrative change everything for you, for us, the readers? How would you describe her character? If we were to act according to the rules of fiction, we might ask, “Is this a reliable narrator?” (We might even determine that she isn’t), but how does Skloot demonstrate that we are not to be seduced by fictional elements, but to entirely trust Deborah’s reliability as a narrator?

7. What does Chapter 7, “The Death and Life of Cell Culture,” tell us about the power public perception holds over life and death? Overall, how does this book represent the media portrayal of the Lacks family and the effects those portraits had on the family?

READING QUESTIONS WEEK 7

1. Part Two of this book describes Henrietta’s autopsy. In the context of this section of the book, which focuses simultaneously on the development of an industry around HeLa cells and the fate of Henrietta’s children after her death, why do you think Skloot starts with that autopsy?

2. One of the most disturbing confrontations between the Lacks family happens on 181-190. What does this confrontation reveal about the scientists who benefit from the Lacks family’s trust in the medical community?

3. What is informed consent? How many instances in this book, so far, can you remember when a patient does not receive informed consent? 

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By brainstorming topics early on, it made the process of writing this paper much easier. I read the book and it brought to my attention several issues in health care that are still present today. I then began researching using Google to find popular sources and the Academic Search Complete database from UCI's library to find scholarly sources. Henrietta Lacks' life portrayed life struggles and definitely demonstrated mistrust of healthcare and discrimination of different social classes and races. We see from Deborah that the family was not aware of the whole special DNA story till 20 years after Henrietta's death and the doctors lied to the family saying they were testing them for cancer cells when they were actually checking if they had the same cells in their DNA. This strongly affected Deborah as it would to anyone else because then you could no longer know if you trust them or not. And we still strongly see this today and although lots of people are aware of these problems there has not been a long-term solution and so I decided to focus my paper on this topic. I brainstormed more than 3 topics and jotted down short notes about them. I visited several websites some of which were scholarly and others just for general background on the topic. It helped me to get ideas of what to talk about in my paper and when I went in-depth answering the questions I learned more things.